Association for Behavior Analysis International

This symposium presents findings from a two-year assessment of the strengths and challenges in supporting individuals with Intellectual and Developmental Disabilities (IDD). Using a mixed methods approach, the research surveyed parents, self-advocates, and family members about existing programs, service access, and resource availability. Year one revealed critical needs, including prioritizing mental health care, offering culturally and ethnically adapted services, and addressing the impacts of race, culture, and socioeconomic status on service delivery, particularly for those with dual diagnoses. In year two, the NADD Research Team utilized open-ended questions to explore the social and contextual factors affecting caregivers of individuals with IDD in Florida. Interviews highlighted common themes related to unmet needs, including significant gaps in personalized medical care for unique medical conditions and therapies. Respondents noted the lack of appropriate mental health services and holistic family support. Concerns about safety in group homes and during crises involving law enforcement were prevalent, emphasizing the need for more secure environments. These findings underscore the importance of addressing service gaps through coordinated and personalized care to improve the quality of life for individuals with IDD.

Basic behavioral skills needed for this ABAI symposium include effective data collection and analysis, implementation of evidence-based interventions, clear communication with stakeholders, and the ability to adapt strategies based on individual client needs and responses.

The Access to Services Through Knowledge (ASK) research project presents findings from a collaborative assessment by the National Association for the Dually Diagnosed (NADD) and the Florida Developmental Disabilities Council (FDDC), aimed at evaluating the strengths and challenges in supporting individuals with Intellectual and Developmental Disabilities (IDD). Employing a mixed methods approach, the study surveyed parents, self-advocates, and family members regarding existing programs, methods for accessing services, and resource availability. Surveys and interviews were conducted in English, Spanish, Kreyol, and French, facilitating participation from bilingual and non-native family members, guardians, and caregivers in their preferred settings. Participants highlighted critical service needs, emphasizing the prioritization of mental health care for individuals with IDD, the provision of culturally and ethnically tailored services, and the impact of race, culture, and socioeconomic status on service delivery for individuals with dual diagnoses. The identified barriers to equitable service provision informed a statewide strategic plan for Florida and presented opportunities for behavior analysts to enhance their competencies in supporting diverse populations.

This study utilized thematic content analysis to explore the emotional and process-related challenges faced by caregivers of individuals with intellectual and developmental disabilities (I/DD) in Florida. The findings revealed that fragmented services, lack of centralized information, and regional disparities, particularly in rural areas, contribute to caregivers' frustration, stress, and feelings of isolation. Caregivers expressed the need for more personalized care plans and better service coordination, especially in healthcare and long-term care settings. Despite significant challenges, many caregivers remained resilient, often becoming advocates for their loved ones. They highlighted the emotional toll of caregiving, including feelings of frustration, anger, and gratitude, while expressing concern about future care needs. Key barriers included inconsistent service access, long waitlists, financial and legal difficulties, and misconceptions about I/DD. Peer networks, community support, and innovative solutions were identified as vital resources, though caregivers called for systemic improvements in service delivery. The study underscores the importance of addressing these gaps through coordinated, personalized care, and increased support for independent living, particularly in underserved regions. Addressing these issues is essential to improving the overall quality of life for individuals with I/DD and their families.